Recent Events: Fall 2021 - Winter 2022

23 SEP 2021 | DRAVET SYNDROME FOUNDATION: "STEPS TOWARD A CURE" FUNDRAISER

As a team, we're always looking for opportunities to support foundations that are leading the push to find a cure for rare diseases, whether it's inside the clinic or out.

In September, we took part in "Steps Toward a Cure" hosted by the Dravet Syndrome Foundation. Participants could donate to the foundation and were encouraged to get out and walk at least a mile during the event.

Many from the RDR team took the time to join in and had a great time while supporting the cause. We're proud that together we helped contribute to the $51,083.98 raised to support research and better support for patients and families affected by Dravet.

27 OCT 2021 | RDR HALLOWEEN

With quite a few Halloween enthusiasts among us, our team transformed into characters from Cruella de Ville, Cat in the Hat, Superman, Mickie Mouse, and many more to celebrate the day.

We were glad to bring a smile to our visitors' faces as they saw some of their favorite characters popping up around the clinic. We especially enjoyed seeing Dr.Phan dressed up as a giant yellow fish!

10 NOV 2021 | CURE SMA: "WALK-NROLL" FUNDRAISER

In November, our team had a great time showing our support for patients and families affected by Spinal Muscular Atrophy (SMA) by participating in a fundraiser called "Walk-n-Roll." We were lucky to have our team outing on a beautiful autumn afternoon.

We are extremely grateful for our SMA patients and families who join in our journey to aid in the development of improved treatments for SMA.

23 SEP 2021 | RDR THANKSGIVING

Thanksgiving was a wonderful time to stop and appreciate the time and talent of everyone on our team--especially their cooking talents! We hosted a potluck-style lunch at the office, and everyone brought in a different cultural dish.

We also took some time to appreciate our patients and families. Thank you so much for all you do to contribute to this important work! We wouldn't be here without you.

16 DEC 2021 | RDR CHRISTMAS PARTY

We wrapped up the year with a fun-filled dinner at Maggiano’s, where good food and a game of white elephant kept us laughing. We realized how competitive we all were in the “Can-you-get-to-the-money” game brought by Dr. Phan. By the way, who actually got the money? It’s all a blur now…

Looking back on the past year, we are so proud and excited for how much our team has grown and how well everyone works together. After so many busy days and packed schedules, having a night to let loose and sit down to dinner was the perfect way to wrap up the year. We hope 2022 will bring many more advancements and good memories for our patients and families, team members, and collaborators!

WHAT'S COMING UP?

Rare Disease Day will be on February 20, 2022 this year. Be prepared to hashtag #ShowYourStripes and #RareDiseaseDay to raise awareness for our patients and their families. Please also visit: Rare Disease Day for ways to get involved or purchase an item to support the National Organization for Rare Disorders (NORD).