Recent Events: Summer 2021

20 Aug 2021 | RDR CELEBRATORY DINNER

At RDR, our staff works extremely hard but that doesn't mean we don’t know how to have a good time! On August 20th, we had a celebratory dinner to commemorate the end of screening for one of our most challenging studies.

One of our game activities of the night had the team scrambling as they hurried to complete a “common terms at RDR” word scramble game. In the end, our intern Erin took the grand prize!

Contributed by Brenda Almaras (Clinical Research Assistant/Regulatory Specialist/Official “Party Planner”)

7 Sep 2021 | WORLD DUCHENNE DAY

On September 7th we recognized World Duchenne Day, a day intended to highlight the community of individuals with Duchenne Muscular Dystrophy (DMD), a rare, genetic neuromuscular disorder that afflicts about 1 in every 3500 boys. As many of our patients at RDR have this condition, we took some time this day to remember how we are continuously inspired by our patients and families for their strength and persistence. This was a special reminder of the importance of the work we do on a daily basis.

World Duchenne Day is celebrated on September 7th (9/7) because the DMD gene (responsible for producing the protein dystrophin, and which is mutated in individuals with DMD) consists of 79 exons, making it the largest known human gene! Each year's event is themed: this year's topic was Adult Life & Duchenne, and the day's events were designed to "inspire and empower young adults with Duchenne and their families to think and plan for the future." Red balloons, the official symbols of the event, are released on this day each year as a way of raising public awareness of DMD. Public awareness and advocacy are some of the most powerful ways to support this important cause, as this amplifies the call for better research funding, access to care, and opportunities to participate in clinical trials for innovative medications and therapies.


We hope you'll join our effort not only on September 7th, but also every day, in spreading the word about DMD and advocating for individuals afflicted with this condition.

Contributed by Genevieve Wilson, CNA, CPT (CRC) from https://www.worldduchenneday.org/
and https://www.worldduchenne.org/