For Collaborators

We have the staff, equipment, training, and resources to conduct your study efficiently and with high recruitment levels.

About Us

We provide comprehensive clinical research services and clinical expertise in a number of rare neurological disorders. Translational research in rare diseases has typically been centered at major academic institutions, however we are an independent team of expert physicians, researchers, and clinical staff. This has enabled us to interface directly with rare disease foundations and parent networks, while developing long-lasting relationships and delivering expert care to our patients. We have also maintained a close relationship with our collaborators at several respected academic centers.


We are an independent company and can interface directly with both industry and academia. We have the expertise and resources needed to conduct pharmaceutical-based clinical trials efficiently.


Our dedicated expert start up staff helps us remove barriers to activation. While the average study takes around 7 months to start, our streamlined start-up process only takes 4-6 weeks. Our team is uniformly trained with state-of-the art research resources, and well-developed standard operating pro

Our patients

Our patients include children, adults, and their families who have been affected by Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, and Epilepsy, among other rare conditions. Most individuals with a rare disease have never met a specialist in their disorder.


The investigators at RDR have independently designed and conducted clinical trials in rare diseases, and served as principal investigators (PIs) on a number of NIH and pharma-sponsored studies.

Our Facility

We have over 4000 square feet of dedicated clinical research space.
  • Onsite X-Ray
  • EKG
  • Routine or Overnight Video-EEG
  • Laboratory
  • Pharmacy
  • Compound pharmacy
  • Physical therapy suite

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Areas of Research

Duchenne Muscular Dystrophy
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Spinal Muscular Atrophy
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Pediatric Epilepsy
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Myasthenia Gravis
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Metachromatic Leukodystrophy
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Tourette Syndrome
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Cerebral Palsy
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Niemann-Pick Type C
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Angelman Syndrome
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Dravet Syndrome
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RDR is committed to transforming clinical research in rare diseases by several mechanisms including working with the patient(s), their families, communities, and patient advocacy groups. Additionally, our industry collaborators are valuable allies in our mission to achieve common goals to bring new therapies to rare diseases community.


Sponsor Contact: 678-552-3640

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