Upcoming Events
NORD Breakthrough Summit
The NORD Rare Disease and Orphan Products Breakthrough Summit convenes thought leaders from patient advocacy organizations, industry, academia, research and government to discuss the most timely and critical topics facing the rare disease community.
Global Site Solutions Summit
The Summit provides a unique hub where sites, sponors, CRO executives, and regulators come together to discuss best practices and ideas whie developing strategic partnerships through ideation sessions, workshops, and focus groups.
PPMD's 2024 Annual Conference
PPMD’s Annual Conference is the largest global gathering of Duchenne and Becker families. Together, we address the most relevant issues, challenges and opportunities, share our collective triumphs and tribulations, our hopes and fears—in the most meaningful way—as ONE.
Cure Duchenne Futures 2024
The CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to the entire Duchenne community. Get ready to transform the future of Duchenne research and, hold on tight, because we'll also be busting some serious dance moves together!
Clinical Trials Day
Organized and promoted by ACRP since 2014, Clinical Trials Day arrives each May 20 as a joyful opportunity to pause in reflection, recognition, and admiration of all that has been accomplished thanks to clinical trials and the people behind them.
World Orphan Drug Congress
The World Orphan Drug Congress convenes top pharmaceutical and biotech companies, government and regulatory authorities, patient advocacy groups, payers, investors and solution providers. This conference provides a forum to discuss and advance orphan drug development and enhance access to life-saving therapies for individuals living with a rare disease.
MDA Clinical & Scientific Conference
The 2024 MDA Clinical & Scientific Conference will provide a comprehensive exploration of pre-clinical, translational, and clinical research and care for individuals with neuromuscular disease (NMD), with particular attention to some of the changes the field is undergoing in response to the approval of new therapies. Alongside our planning committee, session chairs, and speakers we invite you to join us for what promises to be an exceptional confernce experience for the NMD community. We look forward to comign together once again to transform the lives of individuals by neuromuscular disease.
Rare Disease Day
Rare Disease Day is the globally-cordinated movement on rare diseases, working towards equity in social opportunity, healthcare, adn access to diagnosis and therapies for people living with a rare disease.
RDR North Carolina Open House
Join us to unvel our brand-new clinical trial site, dedicated exclusively to rare disease clinical trials. This is your opportunity to connect with fellow researchers, professionals adn visionaries in the field.