Privacy Policy

We may collect information about you to use in our business, enhance the functionality of our website and communicate with you. Your privacy is important to us. We do not sell your information. If you provide us with medical information about you, we handle it in accordance with our HIPAA Privacy Notice posted on our website.

How we obtain information about you?

When you use our website, we may gather information about the type of browser you are using, the IP address and the type of operating system you are using.

When you visit our website, we may use cookies to help us provide you with a better user experience.

We obtain information that you directly provide to us or authorize us to obtain from third parties.

If we are looking for candidates to participate in a clinical study, we may use third party sources to obtain information that suggests you may be a good fit, so we know how to reach you.

How we use information about you?

We use information that we collect about you in our business for reasonable business purposes. Examples include: communicating with you and promoting our services.

We may use our information in our business development and marketing.

We may use your information in recruiting employees, vendors and partners.

We do not sell your information.

If you are participating in a clinical trial we are conducting or are involved with, we use your health information in connection with that clinical trial.

If you are an applicant for a job, we review the information that you provide us for that purpose.

We may use your information to comply with applicable law. For example, if we receive a valid subpoena from a court requiring us to produce information in our possession about you.

Our HIPAA Privacy Notice posted on our website contains additional details about our use of medical information.

How do we protect your information?

We use technical, administrative and physical safeguards to protect your information. We believe that our efforts to protect your information from unauthorized access or misuse are reasonable. However, we cannot guarantee the security of your information. With respect to medical information covered under our HIPAA Privacy Notice, we believe we comply with the HIPAA security rule.

If you participate in a clinical study we administer, the Common Rule requires that we obtain your informed consent to participate in the study. We ask for your specific written permission to use your medical information in our study before using it.

Because we do not sell your confidential information, this acts as an additional protection.

No Contact Policy

If you ask us not to contact you, we will cease sending marketing materials to you. Please make your request in writing to:

Privacy Officer
Rare Diseases Research, LLC
1730 NE Expressway NE
Atlanta, GA 30329
Email: privacyofficer@rarediseaseresearch.com

Children

Our services are not directed toward children. Children under the age of 18 are not allowed to use our website or services, without parental consent.

Questions about our Privacy Policy

If you have questions about our Privacy Policy, you may contact our Privacy Officer at info@rarediseaseresearch.com or by writing at the above address.